I hope my 11-year-old son Joey has a broken leg! Or maybe a chipped shin bone! Wait, maybe he has torn his meniscus! That would be AWESOME! IT WOULD SERIOUSLY BE THE BEST NEWS A MOM COULD WISH FOR!
I’m not crazy or one of those moms who wishes illness upon her child. I actually love my son to the moon and back and would be willing to take on any pain for him. Unfortunately, I can’t do that. Joey is no stranger to pain. He had ear infections, strep throat and many minor surgeries since he was only a few weeks old. In April of 2012, Joey was diagnosed with Langerhans Cell Histiocytosis causing him to have a lesion removed and a bone graft of his hip (Read about diagnosis). Well, for about the last two weeks he’s been complaining of knee and shin pain. It’s progressively gotten worse. So bad in fact that he is using crutches and missed the last two days of school.
LCH or Histio, is a cancer-like disease. It causes his white blood cells to go nuts. They think he’s sick so they go into action. Only there is nothing bad to attack so they end up eating his bones away. So my son is having severe pain. My immediate thought is ‘oh crap, his white blood cells are out it again. The Histio is back.’ My second thought is ‘Oh God, please let my son have a broken leg, a chipped bone or a torn meniscus.’ I find myself pleading with God to give him one of these ailments instead.
You see, if it is Histio, it won’t “JUST” be surgery, a bone graft, 15 weeks of a wheelchair, months on end of physical therapy, etc… It could be all or some of those things but it will also be chemotherapy. Chemotherapy: the use of chemical agents to treat diseases. That scares me to death! I’ve never had chemo and I’ve never discussed it with someone who has. All I know is what I’ve seen on TV. When I hear of chemo I think of extremely thin, sickly looking people with tons of tubes, loosing their hair and vomiting. Now my friend Aimee assures me this isn’t what it’s really like but it scares me to death.
One step at a time though, right?
So the first step was to see our oncologist, which we did today. The second step was to get x-rays. We did that and are waiting on results. Unfortunately x-rays probably won’t show Histio but they will show a broken bone!!!! Wohoo for a possible broken bone! The next step is an MRI. I am waiting to hear when that has been scheduled for. That will show us if it’s Histio. If nothing shows up there, we move on to a PET Scan.
So I am asking this of my readers tonight as crazy as it may sound. I know something is wrong. My son is in SEVERE pain. So this is what I ask of you. Pray and hope for a broken bone, a chipped bone or a torn meniscus. Pray and hope for something other than Histio because Histio is one bad mother… and because I’m afraid of chemo.
Seriously, if you pray, please pray a lot for my son to be well and strong and for our family as well. And if you don’t pray, send us some good vibes and positive thoughts! Joey and his 14-year-old sister love to read your encouraging comments so comment away!
Praying for all of you…and a broken leg!!
I will be praying! As a mom I can’t imagine the anxiety you must be feeling:( Hope you get answers soon Joey!
Of course, I’ll pray for a broken leg or stress fracture or something completely normal. Prayers and good vibes being sent your way.
I know someone, who knows someone, who can arrange for bones to be broken. Best of luck Joey, my family will be praying for you. Gina I’m so very sorry that you are going through this again. Be Strong Joey for u and your Mom.
Praying for you and sending you all good thoughts.
In addition to praying, we will wear our Super Joey T-shirts this weekend!
Prayers and hugs to you all. So sorry to hear Gina….be strong.
Prayer for Joey! Poor Guy…. Savannah would love to come play video games with him if hes up to it!
A friend made me aware of your son’s story. Praying for Joey and for your family as you wait for the results. ❤
I am not a dr. But i study homopathic medicine as a hobby. I assume your son has tested positive for ANA? If so the readings I have done recommends a no gluton diet. Would also reduce his sugar intake and provide him lots of vitamin c (at least 2000mg) vit c is water soluble so what his body doesnt need he will pee out. I would also suggest 25-50mg zinc daily. If he is having issues with his bones calcium is essential. Ask your dr. What amt would b sufficient for him. Sounds like he has an auto immune disorder which in some cases if caught early enough are reversible. I would suggest obtaining the auto immune recovery plan. Its a book you can purchase on amazon for about 20 bucks. Gluten reference manual would also b helpful. Good luck on your steps 2 recovery. Autoimmune disease runs in my family. I have two kids with peanut allergies. Every since they been diagnosed I have become passionate about their health. Although they have not recovered from there allergies. They now know how to manage them so they feel great.
Praying for you all. Looking forward to hearing good news. The hike pictures and story touched my heart.
I’m praying for you. My son too has had lch, three times, three lots of chemo and steroids. He started with a new bone pain in his leg, x rays clear, MRI found abnormality. Had a pet scan last week, thats found possible concern in his eye sockets. Now he needs an MRI of his head to see if this is lch. It’s not looking hopeful, having been here three times before I’m convinced it’s back. He has been off treatment four years, gutted doesn’t come close.