My amazing son Joey has been in the media a lot lately so I want to have one spot where you can find links to his stories. This will be the spot. I will update this post as needed.
Joey’s goal is to raise awareness for Histio, and hopefully someday find a cure for his disease.
Advocating for Your Child – Cincinnati Family Magazine – Oct. 25, 2012
Histio Survivor Prepares for Fundraising Event, Community Press, July 12, 2013
Enjoying the Little Things and Making Memories, Looking4ward2tomorrow, Nov. 15, 2013
Team Super Joey at Cyclones Game, Jan. 25, 2014
Fort Thomas Boy Fights Rare Disease With a Strong Voice – WCPO Digital, Feb., 2014
Teen is Survivor of Bone-Destroying Disease – Community Press, Feb. 25, 2014
Histio Awareness Video – Produced by Cathy Ross, Starring Joey Holt, Requested by Histio Association, 2014
Rare Disease Day Proclamation, Fort Thomas Matters, Feb., 18 2014
Team Super Joey Fights Histio, Rare Disease Day, Feb., 2014
Joey Advocates for Histio & Rare Disease Day, Fox 19 Morning News, Feb. 28, 2014
Joey is Five in a Million, Cincinnati Childrens Hospital Blog, Feb. 28, 2014
Follow Team Super Joey on Twitter @gina5620 #teamsuperjoey
Follow Team Super Joey on Facebook at Raising2tweens
Thanks to everyone who has shown their support!
I think it is awesome that there has been so many outlets for you and Joey to share his story! I hope that the attention will bring more awareness and a cure! Best wishes, Joey! What a hero you are!
Thank you. His hope is to find a cure.
Keep making people aware.. you are so right that a disease might be rare but hope shouldn’t be!
Thank you Sherryl. He’s a fighter.
First, how cool that Joey is getting the word out there! And you too of course 🙂
It’s easy for people to forget what issues are important, there can be so many of them. But you never know when you can change someone’s life forever when you keep the topic fresh in their minds. Someone looking for a diagnosis? For others in their same “world”? Or others looking for a way to help?
I’ll definitely keep on sharing; for Joey’s sake, for your family, and everyone else who needs to know about Histio.
Thanks for your support. He’s a tough kid.
Joey you are my hero!!! Sending lots of love and sharing where I can!
Thank you! He loves reading these notes.